Meeting Schedule
Upcoming Meetings
TBD
Past Meetings
2023:
Monday, August 7 at 6pm. Topic: Introduction / Meet & greet
Tuesday, September 5 at 6pm. Topic: Home oxygen therapy. Speaker: Chelsea Dallas, RRT
Monday, October 2 at 6pm. Topic: Lung transplant. Speaker: Dr. Puneet Garcha
Monday, November 6 at 6pm. Topic: Palliative care. Speaker: Dr. Kate Tindall
Monday, December 4 at 6pm. Topic: Antifibrotic side effects. Speaker: Dr. Margaret Kypreos, UT Southwestern
2024:
January - off for holidays
Monday, February 5 at 6pm. Topic: Clinical trials. Speaker: Dr. Anoop Nambiar
Monday, March 4 at 6pm. Topic: Pulmonary Rehabilitation. Speaker: Kitty Collins, RRT
Monday, April 1 at 6pm. No guest speaker.
Monday, May 6 at 6pm. Topic: Pulmonary Function Tests. Speaker: Dr. Nick Henry
Monday, June 3 at 6pm. No guest speaker.
Monday, Aug 5 at 6pm. Topic: Pulmonary hypertension. Speaker: Dr. Raju Reddy
2025:
Tues March 4 at 6pm. Topic: Introductions/ Catch up
Only registered members will be able to attend meetings.
Suggested topics for discussion during meetings
What advice do you have for someone newly diagnosed with ILD?
What habits help you live your best life each day? Diet or exercise tips?
What is the hardest thing about living with ILD?
How do you manage side effects from medications?
How do you manage stress, anxiety, and sadness?
How do you stay active despite being on oxygen?
How do you keep track of your test results, upcoming appointments, labs, etc?
How did you explain your diagnosis to your loved ones? How can you help them know how to best support you?
How is your family coping with your illness?
Have you participated in or looked into any clinical trials? What was your experience like?
Have you been evaluated for lung transplant? What was your experience like?
Have you done any advance care planning, such as making a will, a medical power of attorney, or an advance directive? What advice do you have?
Are you in a palliative care or hospice program? What has been your experience with this?